Academic institutions, mayor obstetric center
- University College Cork, Ireland
- University of Liverpool, United Kingdom
- Keele University, United Kingdom
- University of Groningen, Netherlands
- Erasmus University Rotterdam, Netherlands
- Karolinska Institutet, Sweden
- Copenhagen Trial Unit, Denmark
SME’s, technology & industry
Scientific Advisory Board
The Scientific Advisory Board has outstanding expertise in clinical, scientific, commercial and translational disciplines; they did not only aid dissemination out to the scientific community, but ensured as well that the consortium was appropriately responsive to advances and approaches by external agencies.
- Professor Lucilla Poston (King’s College London, UK) (CHAIR)
- Prof. Fabio Facchinetti (Università degli studi di Modena e Reggio Emilia, Italy)
- Prof. Douglas Kell, (University of Manchester, UK)
- Prof. Christian Müller, (University Hospital, Basel, Switzerland)
- Prof. Vicente Serra Serra (University of Valencia, Spain)
- Prof. Peter von Dadelszen (University of British Columbia, Canada)
- Prof. Wolfgang Holzgreve (University of Bonn, Germany)
- Mrs. Eleni Z. Tsigas, (Preeclampsia Foundation US and CHAIR of PAB)
Patient Advisory Board
The Patient Advisory Board will emphasise the needs of the end user, and will ensure that the programme is relevant to pregnancy women across the different European jurisdictions. Following representatives have been approached:
- Ms. Dianne Garland (Action on Pre-eclampsia UK)
- Ms. Sabine Fohl-Kuse (Gestose Frauen e.V. Germany)
- Ms. Estelle Batelle (Association de Prévention et d’Actions contre la Pré-Eclampsie France)
- Ms. Eva Huber (Präeklampsie Verein Österreich Austria)
- Ms. Mayer Grego (Sulle Ali di un Angelo Italy)
Ethics Advisory Board
The Ethics Advisory Board (EAB) for the IMPROvED study is chaired by Dr. Deirdre Madden at University College Cork. Other members include Professor Lesley McCowan at the University of Auckland, New Zealand, Professor Robert Shaw at the University of Nottingham, UK, and Xavier Carne at the University of Barcelona, Spain. The EAB will liaise closely with the Copenhagen Trial Unit and the Study Coordinator to ensure that the study is performed to the highest ethical standards.
Patient groups and other networks
Close liaison, communication and partnership with relevant patient groups were crucial elements of the programme. Working through the Patient Advisory Board, our network of patient groups have been critical and they contributed to every facet of the study, from design to dissemination of information materials to the public.
Following patient support organisations were of aid for the project:
Preeclampsia Foundation (USA), an empowered community of patients and experts, providing support and advocacy for the people whose lives have been or will be affected by the condition – mothers, babies, fathers and their families.
Action on Pre-eclampsia (UK), a national charity aimed at raising public and professional awareness of pre-eclampsia, improving care, and easing or preventing physical and emotional suffering caused by the disease.
Gestose Frauen e.V. (Germany), German peer-help group, active since the mid-1980s.
Association de Prévention et d’Actions contre la Pré-Eclampsie (France), prevention, education, awareness and training on the pathology of pre-eclampsia.
Präeklampsie Verein Österreich (Austria), a non-profit organization, founded in the fall of 2007 under the initiative of mothers and fathers who were personally affected by preeclampsia and / or HELLP syndrome.
Sulle Ali di un Angelo (Italy), a Trieste-based voluntary organization, founded in 2005 by the will of a group of parents, with the aim to support and help people who have lost a child in prenatal, perinatal or neonatal and to raise awareness on social and health care on neonatal mortality or severe prematurity caused by diseases that make high-risk pregnancies.
Stichting HELLP-Syndroom (Netherlands), a foundation established in March 1994 with the intention of women whose pregnancy was complicated with (pre)-eclampsia and / or HELLP syndrome to provide information and peer support.